“Let’s Talk Research” – Improving Older Adults’ Understanding of Opportunities for Research Involvement

Abstract ID
3583
Authors' names
Lucy Rimmer1,2; Helen Atkinson1; Fionnuala Johnston2; Avan A Sayer 1
Author's provenances
1AGE Research Group, Translational and Clinical Research Institute, Newcastle University, Newcastle upon Tyne; 2 Sunderland Royal Hospital, Sunderland
Abstract category
Abstract sub-category

Abstract

Introduction

Older adults have historically been excluded from research, in part due to preconceived notions from researchers, clinicians and patients themselves about research being for younger patients or those with certain medical conditions. These assumptions persist despite “Healthy Ageing” being a priority theme for the National Institute for Health and Care Research and the extensive body of evidence that involvement in research benefits clinical care for older adults. This quality improvement project (QIP) aimed to improve older adults’ understanding of opportunities for research involvement.

Methods

The standard for this QIP is the National Institute for Health and Care Excellence Guidance NG22 (Older People with Social Care Needs and Multiple Long-Term Conditions) recommendation for research: “… what is the lived experience of older people with social care needs and multiple long-term conditions”

The QIP was conducted in random week-long windows from March to June 2024 on a Care of the Elderly ward at Sunderland Royal Hospital. All discharged patients were included bar patients at the end of life. The “Plan, Do, Study, Act” methodology was used for this audit. Clinical documentation was scrutinised for evidence of discussion of research as evidence of success of an intervention. Interventions included leaflets, education of the junior medical team and discussion with the multidisciplinary team (MDT).

Results

No included patients had evidence of research discussion in clinical notes at baseline, providing leaflets improved this to 9%, but this was not maintained in the further interventions (education of the MDT and junior medical team).

Conclusions

This QIP failed to show significant objective success in improving older adults’ understanding of research opportunities, limited by documentation quality, rotational staff, and lack of staff confidence. Subjective benefit was felt and discussed, with scope for repeating this QIP with lessons learnt from this attempt.

Comments

This is such an interesting project! Anecdotally I think it is easy for research teams to exclude older adults from participating for reasons such as delirium. It would be interesting to discuss with research nursing teams and explore what the most common barriers are?

Submitted by katiekinnear_25267 on

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Thank you for your comment! You are right, research nurses are a great help in this sort of thing. I had discussed the project with one of our research nurses in the trust whose work was primarily in the field of movement disorders so she had some experience with older adults but actually again she didn't do much work with those with more advanced cognitive impairment, unfortunately.

You highlight an important problem. As a researcher doing studies with older people, recruitment is challenging and I think that many potential participants are not given the opportunitiy to take part. When older people join our studies, they enjoy it and get a lot out of taking part. I know it takes time for clinicians to talk to patients abou research but it brings benefits to both the patient and researchers. 

Submitted by esther.william… on

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This is a very interesting topic for a project and highlights a very important problem. Data well presented. 

Submitted by megansheridan1… on

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