Transforming Parkinson's Disease Care Through Digital Wearables: A Patient-Centred Approach

Introduction

The Personal Kinetograph™ (PKG) is a remote monitoring device that provides objective evidence of motor control in Parkinson's disease (PD). It is conditionally recommended by NICE to aid clinical decision-making (1). Our hospital trust has developed a PKG service over two years. We present the results of patient questionnaires to demonstrate the role of PKG in patient education and mental wellbeing, alongside clinical care.

Method

Between August 2023-December 2025, 40 patients under the care of Geriatrics Parkinson's Team underwent PKG monitoring. Results were explained via telephone or face-to-face clinic. Some patients received copies of their PKG results prior to explanation. 27/40 patients received a questionnaire about their PKG experience, and impact on their understanding, attitude towards their PD and treatment. 13/40 patients were excluded due to death, inability to engage with process, or had not yet received their results. Anonymised results were analysed by the team.

Results

We received 21 responses (62% male, 38% female) from patients aged 60-90 years. The PKG was universally acceptable. 81% patients understood the reason for PKG and 95% were comfortable with the device. A significant proportion of patients felt PKG improved their understanding of their PD diagnosis (43%), symptoms (48%), medications (48%), and improved their attitude towards their diagnosis (33%), symptoms (24%) and medications (43%). 24% patients reported PKG improved their mental wellbeing. Patients who received a copy of their PKG understood their results well, reported greater improvement in understanding and attitude which was associated with improvement in their mental wellbeing.

Conclusion

PKGs have a direct positive impact on understanding, attitude and mental wellbeing of patients living with PD. Patient ownership of PKG results enhances this effect. Introducing PKG discussion during follow-up appointments can increase its perceived value and improve patient satisfaction. Small changes can maximize benefits of clinical investigations, enhancing patient-centred care.